# ACP Organ Donation Choice Registration in Donor Register - Advance Care Planning (PZP) v1.0.0-rc2

* [**Table of Contents**](toc.md)
* [**Artifacts Summary**](artifacts.md)
* **ACP Organ Donation Choice Registration in Donor Register**

## Resource Profile: ACP Organ Donation Choice Registration in Donor Register 

| | |
| :--- | :--- |
| *Official URL*:https://api.iknl.nl/docs/pzp/r4/StructureDefinition/ACP-OrganDonationChoiceRegistration | *Version*:1.0.0-rc2 |
| Draft as of 2026-03-03 | *Computable Name*:ACPOrganDonationChoiceRegistration |
| **Copyright/Legal**: Copyright and related rights waived via CC0, https://creativecommons.org/publicdomain/zero/1.0/. This does not apply to information from third parties, for example a medical terminology system. The implementer alone is responsible for identifying and obtaining any necessary licenses or authorizations to utilize third party IP in connection with the specification or otherwise. | |

 
Observation capturing whether the patient's organ donation choice is recorded in the donor register as reported by the patient. It is intended to track the administrative status of the decision rather than the clinical or legal specifics of the donation choice itself. This information is exchanged so the next caregiver knows whether the topic requires attention in future ACP conversations. Based on Observation resource. 

**Usages:**

* Examples for this Profile: [Observation/ACP-OrganDonationChoiceRegistration-Pat1](Observation-ACP-OrganDonationChoiceRegistration-Pat1.md) and [Observation/ACP-OrganDonationChoiceRegistrationInDonorRegister-Pat2](Observation-ACP-OrganDonationChoiceRegistrationInDonorRegister-Pat2.md)
* CapabilityStatements using this Profile: [ACP CapabilityStatement Consulter](CapabilityStatement-ACP-CapabilityStatementConsulter.md) and [ACP CapabilityStatement Provider](CapabilityStatement-ACP-CapabilityStatementProvider.md)

You can also check for [usages in the FHIR IG Statistics](https://packages2.fhir.org/xig/iknl.fhir.r4.pzp|current/StructureDefinition/ACP-OrganDonationChoiceRegistration)

### Formal Views of Profile Content

 [Description of Profiles, Differentials, Snapshots and how the different presentations work](http://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#structure-definitions). 

 

Other representations of profile: [CSV](StructureDefinition-ACP-OrganDonationChoiceRegistration.csv), [Excel](StructureDefinition-ACP-OrganDonationChoiceRegistration.xlsx), [Schematron](StructureDefinition-ACP-OrganDonationChoiceRegistration.sch) 



## Resource Content

```json
{
  "resourceType" : "StructureDefinition",
  "id" : "ACP-OrganDonationChoiceRegistration",
  "url" : "https://api.iknl.nl/docs/pzp/r4/StructureDefinition/ACP-OrganDonationChoiceRegistration",
  "version" : "1.0.0-rc2",
  "name" : "ACPOrganDonationChoiceRegistration",
  "title" : "ACP Organ Donation Choice Registration in Donor Register",
  "status" : "draft",
  "experimental" : false,
  "date" : "2026-03-03T12:29:58+01:00",
  "publisher" : "IKNL",
  "contact" : [{
    "name" : "IKNL",
    "telecom" : [{
      "system" : "url",
      "value" : "https://iknl.nl/"
    },
    {
      "system" : "email",
      "value" : "info@iknl.nl"
    }]
  }],
  "description" : "Observation capturing whether the patient's organ donation choice is recorded in the donor register as reported by the patient. It is intended to track the administrative status of the decision rather than the clinical or legal specifics of the donation choice itself. This information is exchanged so the next caregiver knows whether the topic requires attention in future ACP conversations. Based on Observation resource.",
  "copyright" : "Copyright and related rights waived via CC0, https://creativecommons.org/publicdomain/zero/1.0/. This does not apply to information from third parties, for example a medical terminology system. The implementer alone is responsible for identifying and obtaining any necessary licenses or authorizations to utilize third party IP in connection with the specification or otherwise.",
  "fhirVersion" : "4.0.1",
  "mapping" : [{
    "identity" : "pall-izppz-zib2020v2026-02-24",
    "uri" : "https://decor.nictiz.nl/exist/apps/api/dataset/2.16.840.1.113883.2.4.3.11.60.117.1.1/2020-07-29T10%3A37%3A48/$view?language=nl-NL&ui=nl-NL&format=html&hidecolumns=3456gh&release=2026-02-24T09:29:59",
    "name" : "ACP dataset"
  },
  {
    "identity" : "sct-concept",
    "uri" : "http://snomed.info/conceptdomain",
    "name" : "SNOMED CT Concept Domain Binding"
  },
  {
    "identity" : "sct-attr",
    "uri" : "http://snomed.org/attributebinding",
    "name" : "SNOMED CT Attribute Binding"
  }],
  "kind" : "resource",
  "abstract" : false,
  "type" : "Observation",
  "baseDefinition" : "http://hl7.org/fhir/StructureDefinition/Observation|4.0.1",
  "derivation" : "constraint",
  "differential" : {
    "element" : [{
      "id" : "Observation",
      "path" : "Observation",
      "mapping" : [{
        "identity" : "pall-izppz-zib2020v2026-02-24",
        "map" : "746",
        "comment" : "Keuze orgaandonatie vastgelegd in donorregister? ([Meting])"
      }]
    },
    {
      "id" : "Observation.code",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.code",
      "patternCodeableConcept" : {
        "coding" : [{
          "system" : "http://snomed.info/sct",
          "code" : "570801000146104"
        }]
      },
      "mapping" : [{
        "identity" : "pall-izppz-zib2020v2026-02-24",
        "map" : "747",
        "comment" : "Keuze orgaandonatie vastgelegd in donorregister? ([MetingNaam])"
      }]
    },
    {
      "id" : "Observation.subject",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.subject",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : ["https://api.iknl.nl/docs/pzp/r4/StructureDefinition/ACP-Patient|1.0.0-rc2"]
      }]
    },
    {
      "id" : "Observation.encounter",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.encounter",
      "type" : [{
        "code" : "Reference",
        "targetProfile" : ["https://api.iknl.nl/docs/pzp/r4/StructureDefinition/ACP-Encounter|1.0.0-rc2"]
      }]
    },
    {
      "id" : "Observation.effective[x]",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.effective[x]",
      "mapping" : [{
        "identity" : "pall-izppz-zib2020v2026-02-24",
        "map" : "752",
        "comment" : "[MeetDatumBeginTijd]"
      }]
    },
    {
      "id" : "Observation.performer",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.performer"
    },
    {
      "id" : "Observation.value[x]",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.value[x]",
      "definition" : "Organ donation choice recorded in donor register.",
      "type" : [{
        "code" : "CodeableConcept"
      }],
      "binding" : {
        "strength" : "required",
        "valueSet" : "https://api.iknl.nl/docs/pzp/r4/ValueSet/ACP-YesNoUnknownVS|1.0.0-rc2"
      },
      "mapping" : [{
        "identity" : "pall-izppz-zib2020v2026-02-24",
        "map" : "748",
        "comment" : "Keuze orgaandonatie in donorregister ([MetingWaarde])"
      }]
    },
    {
      "id" : "Observation.dataAbsentReason",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.dataAbsentReason",
      "mapping" : [{
        "identity" : "pall-izppz-zib2020v2026-02-24",
        "map" : "748",
        "comment" : "Keuze orgaandonatie in donorregister ([MetingWaarde])"
      }]
    },
    {
      "id" : "Observation.method",
      "extension" : [{
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:populate-if-known"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorProvider|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      },
      {
        "extension" : [{
          "url" : "code",
          "valueCode" : "SHALL:no-error"
        },
        {
          "url" : "actor",
          "valueCanonical" : "https://api.iknl.nl/docs/pzp/r4/ActorDefinition/ACPActorConsulter|1.0.0-rc2"
        }],
        "url" : "http://hl7.org/fhir/StructureDefinition/obligation"
      }],
      "path" : "Observation.method",
      "min" : 1,
      "patternCodeableConcept" : {
        "coding" : [{
          "system" : "http://snomed.info/sct",
          "code" : "1156040003"
        }]
      }
    }]
  }
}

```
